Making Your Support Needs a Priority. Together.
Managing day-to-day life after diagnosis can be overwhelming, but you don’t have to do it alone. Talking to others on a similar journey who understand and face some of your day-to-day challenges is important. Family and friends try, but often it’s hard for them to understand, and you need to talk to someone who just gets it.
Connecting one-on-one with other advanced breast cancer patients can be a great mental support. They can understand what you are going through and tell you it’s ‘OK to feel what you are feeling’. There are a number of support groups out there that you can reach out to and join to help with some of your everyday challenges.
Helpful Patient Support Groups
There are a number of patient organisations which provide specific support and assistance for women with advanced breast cancer. These include:
BREAST CANCER AOTEROA COALITION https://www.breastcancer.org.nz
Breast Cancer Aotearoa Coalition is an organisation run by breast cancer survivors that offers resources for understanding breast cancer treatment and care, as well as providing details about the ways in which you can access support. Their website includes stories and videos from other New Zealand women who’ve experienced breast cancer and is good way of keeping up with local and international breast cancer news and research.
BREAST CANCER FOUNDATION NZ https://www.breastcancerfoundation.org.nz/
Breast Cancer Foundation specialist nurses help Kiwis to understand their breast cancer treatments and side effects, and to access support services, including free counselling – call 0800 BC NURSE (0800 226 8773) or email [email protected]. BCFNZ’s live webinars feature experts speaking on all aspects of cancer care and living with cancer. Watch past webinars on the website, where you’ll also find a database of current clinical trials. Patients and supporters can join the mybc online community.
BREAST CANCER TRIALS www.breastcancertrials.org.au
Breast Cancer Trials is the largest independent, oncology clinical trials research group in Australia and New Zealand and for more than 40 years, it has conducted a clinical trials research program for the treatment and prevention of breast cancer. The research program involves almost 800 researchers at more than 100 institutions and their website lists their currently open clinical trials.
Metavivors NZ is a supportive online community for New Zealanders living with advanced breast cancer, providing mutual support, friendship and information for those who find themselves facing diagnosis and treatment for advanced breast cancer. You can find out more about Metavivors NZ here. To join the Metavivors NZ Facebook group email: [email protected]
SWEET LOUISE https://sweetlouise.co.nz/
Sweet Louise provides practical, emotional and social support to people living with advanced breast cancer in New Zealand. We do this by offering time with a trained coordinator, hosting social gatherings and events, gifting vouchers to use on things like wellbeing experiences, readymade meals, cleaning, gardening and other support services. For more information or support call 0800 11 22 77